Day 11 (Monday August 8th)

Today has been a busy day for both Greg and I. Greg has been studying for his two tests that will finish out his last semester at school. He will then officially graduate with his Accounting degree. The finals were put on hold last week due to Aiden becoming very unstable.Thank you IPFW! I have been making tons of phone calls for insurance for Aiden, filling out paperwork and setting up payment plans for bills we have received so far. And to think that we haven't received a single bill yet from the day Aiden was born or from my scary hysterotomy procedure. Aiden has been stable today. He has had some dips in his blood pressure but this seems to happen when there is too much noise in the room or when the nurses turn him and handle him too much. We do not have the official word on his cranial ultrasound. We were told by his nurse that there were no changes according to her report. We are still waiting to hear the offiical report from the doctors. One of Aiden's goal's to trial off ECMO again was to get to 10 on Flolan. He will officially be to 10 as of 9pm tonight. They complete an ECHO tomorrow sometime (waiting on the time for this). While they do this, they will then trial to see how his pulmonary hypertension is during this. The reason he had to go back on ECMO was because he had bad pulmonary hypertension and at that was not on Flolan because the doctors were not given enough time to start this medication. We are now hoping that with him back on and being prepped for the trial that he will make it off ECMO again and stay off. One of the side effects of Flolan is that some babies get the "shakes". Aiden shakes throughout the day and night and it is heartbreaking because to parents it looks like he is cold but that is not the reason. He also has been making a lot of faces more like he grimaces when he is agitated. I have talked with the doctors and they have decided to up his morphine to see if he stops. Today he did seem to grimace less. Hoping we found the cure for his grimaces.